Patience is a Virtue – that I’m Still Acquiring

You think it looks painful - try having this thing jammed into your eye.

No stone will be left unturned, no road untravelled as we continue journeying through all the possibilities to keep my eyesight as functional as possible. The eyedrops that I mentioned last month proved unsuccessful on their own – and now we turn to steroid injections directly into the eye as a solution to getting the vision stabilized again. There’s a bit of inflammation in the tissue that was transplanted in September, so I’ll stay on the drops through this first dosage of steroid to see if the swelling decreases.

I must confess that the past 24 hours hasn’t been without complaining. Once the steroid is injected into the eye, very little usable vision is present. Basically, the steroid covers the entirety of my visual field, so not much of anything gets to the back of my eye, including light. It’s intimidating and a little scary – but I’m holding onto hope that there’s something brilliant on the other side of this dark and fuzzy mess.

Patience and hope are all I can cling to through this waiting period. Have I ever mentioned how truly impatient I am? I huff and puff when I wait on my cherry Pop-Tart to bound out of the toaster – you can only imagine what the wait is like for better eyesight. There are times I want to give up, times where I grapple fears and doubts, and others where I’m so consumed with impatience that I get angry, sometimes even livid. It’s hard to believe that I was weeks, maybe days, away from seeing our little boy’s face.

I’ve come to learn so much about myself through this journey. I have to struggle with surrendering my impatience for the sake of my family. I’ve had to embrace the notion that my doctors, though with skilled hands and tenured insights, are only instruments of an even greater Physician. It’s been a long road thus far – but I know that we’ve yet to see the last of the twists and turns. 

I can’t see a thing right now, with the exception of some light. My first followup is February 15th and we’ll evaluate the effectiveness of the steroid injection, whether another round is necessary or whether the treatment option will be ongoing. The dosage used can last about two months, so if this does indeed resolve some of the vision loss I’m experiencing, this could be the routine for us, as frustrating as it may be.

Thanks for sticking around as we turn the page. I can’t tell you how much the support means to us. I’ll update as I notice changes – for better or worse.

  • Tim

     was gonna call and ask, but this answers my question.  I go to night shift the next 4 nights. I’ll try to call tomorrow afternoon when I get up. I hate nightshift.

  • Candice

    i can’t imagine what you must be going through. especially to not gaze without hindrance on the face of sweet tyson. praying for you guys.

  • Kelly

    Always thinking about you guys and praying. <3 You're a strong bunch of people and I think this will only be a speed bump in your road. Love you guys. <3

  • http://just-ask-kim.com/ Kimberly Castleberry

    I am fortunate that the eye issues I’ve been dealing with the last four months or so are not as severe as yours. I’m living on high dose prednisone (steroid) and other stuff due to some problems with my left eye that came up rather suddenly. Fortunately mine appears to be moving the right (healing albiet slowly) direction. Like you, I have zero patience for this although I don’t normally fuss at my poptarts LOL! Hopefully yours soon begin to heal as mine are and you are able to fully see your little one. Your in my thoughts.

  • Leslie Jarzabski

    Hope everything goes as dreamed.  You deserve great things.  Congrats to you and your lady on the little one!! These are really exciting times.  :)

  • Ravenna Romack

    I’m just impressed that you’ve been so, … what’s a nice way to say stubborn? … persistent and steadfast through this whole process!! Hopefully something works and it’s within reach for y’all; but even if not, you’ve impressed me just by trying!!