Patience is a Virtue – that I’m Still Acquiring

You think it looks painful - try having this thing jammed into your eye.

No stone will be left unturned, no road untravelled as we continue journeying through all the possibilities to keep my eyesight as functional as possible. The eyedrops that I mentioned last month proved unsuccessful on their own – and now we turn to steroid injections directly into the eye as a solution to getting the vision stabilized again. There’s a bit of inflammation in the tissue that was transplanted in September, so I’ll stay on the drops through this first dosage of steroid to see if the swelling decreases.

I must confess that the past 24 hours hasn’t been without complaining. Once the steroid is injected into the eye, very little usable vision is present. Basically, the steroid covers the entirety of my visual field, so not much of anything gets to the back of my eye, including light. It’s intimidating and a little scary – but I’m holding onto hope that there’s something brilliant on the other side of this dark and fuzzy mess.

Patience and hope are all I can cling to through this waiting period. Have I ever mentioned how truly impatient I am? I huff and puff when I wait on my cherry Pop-Tart to bound out of the toaster – you can only imagine what the wait is like for better eyesight. There are times I want to give up, times where I grapple fears and doubts, and others where I’m so consumed with impatience that I get angry, sometimes even livid. It’s hard to believe that I was weeks, maybe days, away from seeing our little boy’s face.

I’ve come to learn so much about myself through this journey. I have to struggle with surrendering my impatience for the sake of my family. I’ve had to embrace the notion that my doctors, though with skilled hands and tenured insights, are only instruments of an even greater Physician. It’s been a long road thus far – but I know that we’ve yet to see the last of the twists and turns. 

I can’t see a thing right now, with the exception of some light. My first followup is February 15th and we’ll evaluate the effectiveness of the steroid injection, whether another round is necessary or whether the treatment option will be ongoing. The dosage used can last about two months, so if this does indeed resolve some of the vision loss I’m experiencing, this could be the routine for us, as frustrating as it may be.

Thanks for sticking around as we turn the page. I can’t tell you how much the support means to us. I’ll update as I notice changes – for better or worse.

Could $800 Eyedrops Allow Me to See Tyson?

It’s expensive, that’s for sure, but I’d do just about anything to catch a gander at this little one. It’s been a winding road on this journey with my eyesight. I certainly deserve nothing, but by some miraculous force, I’m still seeing something. The problem is – I’m not seeing as much as I did not but three weeks ago. Truly frustrating, but more confusing than anything.

I mentioned taking a trip to Dallas for a checkup and reality check with my doctors. I’m, no doubt, seeing the most brilliant brains in the business, and certainly they can relate to a guy who desperately wants to gaze into his newborn son’s eyes for the first time. I mean, I was just reading text on an iPhone screen in October. What gives?

I didn’t walk away with a solution, but given the circumstances and timeline of my incredible vision a few weeks back, my doctors have concluded that my macula, the high-definition portion of my retina, is swollen, most likely due to the handful of retinal detachments through the years. When they transplanted the new cornea in September, the doctor put a high dose of steroids into the eye along with the tissue, mainly as an aide to recovery and inflammation related to the surgery. As an added bonus, these steroids acted as a relief for the inflammation in the macula. Funny how that worked.

I’m not great with analogies, but let me try to explain this a bit further. Assume my eye is a window, and before the surgery it was fogged up and dirty. When they transplanted the new cornea, they removed the fog. With a swollen macula, the dirt and grime still remain. Since the steroids minimized the swelling, I got a glimpse through a clear window – or at least as clear as my window will ever get at this point. Now – the window is dirty again. The fogginess isn’t present, but definitely tons of grime.

The first route my doctors want to take is eyedrops. A heavy dose of steroid drops were prescribed, and while I haven’t seen any progress yet, we’ll evaluate their effectiveness on January 11th. If the drops don’t solve the problem, the next step will be injecting steroids directly into the eye. There’s no guarantee that will work either – but it is a bit more direct than the eyedrops. It’s also more invasive, which we’re trying to keep in mind, too.

I want unhindered eyesight to see our boy’s face. I want to continue enjoying all the visual nuances that I’ve gone so long without – and got a glimpse of through the past few weeks. We’re holding out hope that the solution is still in sight, but it may be another month before we know for sure.

This has turned into more of a personal/family blog over the past couple of months – and I apologize to many of you. Thanks for being faithful and supportive as we continue on the chaotic ride that is our lives.

I’m Normally a Roller Coaster Fanatic

If you’ve caught even a single update over the past week or so, you’ll know my family has been experiencing quite a bit of change. Often shying away from monotony, I’m always excited to turn the page and see what’s behind the corner – but it’s all happened so fast. In an attempt to keep you all in the loop, I’m going to post just a quick recap of all that’s going on – and I’ll expand as we have time.

Tyson is Here!

Tyson Robert RomackIn a strange turn of events, Tyson was delivered via c-section last Wednesday, November 23rd, at 9:14AM. Our little guy weighed in at five pounds and four ounces, and measured 18.5 inches in length. I’ll most certainly delve into more of the labor and delivery stories – because there certainly are plenty – but long story short, Tyson was diagnosed with IUGR, or intrauterine growth restriction, and the nourishment needed to keep him growing and thriving was unattainable in the womb.

Taking him last Wednesday was an incredible call on the part of our OB – our long journey is just now beginning regarding Ty’s health. A 10% weight reduction is normal after birth, as most babies easily regain those pounds after a healthy feeding cycle begins during the first two weeks. But – Tyson’s low weight makes each ounce count even more, and he’s now down 12% since last Wednesday. Holding a tiny four pound and ten ounce baby is certainly adorable, but he’s absolutely going to have to pack on the poundage over the next couple days. Weight checks every 48 hours, nursing every two hours and a half ounce of supplemental formula four times daily are the first non-invasive steps to make that happen. Given his diagnosis, we don’t want him back in a hospital on IVs and feeding tubes, so we’re working around the clock to keep him fed, but also nice and toasty, as being cold and self-warming burns off so many calories.

More updates on all of this tomorrow.

Parking a Stroller in the Unemployment Line

I got the unexpected, and quite unfortunate, call last Monday that I was being laid off due to some lost work and budget issues. Many of you know that I’ve worked for my buddy and partner, Ross, for the past year, and we served local businesses with their digital and social media marketing needs. It’s been a blast. But – with the departure of a client comes a decline in that business, and sad as it may be, my full-time involvement just wasn’t possible anymore.

As I cozied up to the idea of a part-time job, the opportunity started looking a lot less likely as I fleshed it out with my partner. Money just wasn’t there, and in a very difficult and heart wrenching decision, I gave my formal decision yesterday to step away altogether. No hard feelings between Ross and I – just business.

I don’t know where that has us, to be honest, but I’m not terrified just yet. I believe in my abilities, but more importantly, I believe in the opportunity that exists around this local community. Now, more than ever, the ideas and concepts I’ve invested in so fully are most important to local businesses, and I’m going to move full force into what all I can offer them. I’m expecting great things – so hold on for more news on all of this soon, too.

Can I See My Son?

I’ve gotten this question quite a bit over the past couple of days. I realize my last post ranted and raved on the excellent progress being made through my recovery, but the fact is that I’ve experienced sharp declines in my eyesight, actually, and I’m seeing almost as poorly as I did before the surgery. We are completely unsure of why that is – but I do have appointments with a few of my doctors this afternoon.

I’ve seen Tyson’s nose, a few pictures (that I suspect I’m not fully seeing), and the occasional glimpse at his hands and feet, but I’ve yet to see the whole enchilada. I’m holding out hope that this journey with my eyesight isn’t over yet – and, while I want positive and constructive answers from my docs today, I just want *ANY* answers. I want to see straight into my son’s eyes – that’s what I really want.

All that being said, I came to the realization yesterday that, as difficult as this is to say, and even more difficult to fully believe, I don’t need to see Tyson’s face to know how much I love him and need him in my life. Seeing him, as awesome as it will be, doesn’t make me more or less of his father. I love this little guy with all I’ve got, and with each coo, whimper, whine, cry, and even dirty diaper, he melts our hearts just a little bit more.

I’ll keep you updated on what my doctors say this afternoon. I’m hopeful, but also completely willing to submit to disappointing news, as well.