want some real talk on a Tuesday?
I accepted a long time ago that you don’t get into disability resources or student affairs to get super rich. I’ll never have the biggest house on the block, the widest screen on the wall or a closet full of uber expensive threads … but goodness, it feels good to go to work every day and engage with students and faculty!
And the insurance has saved our bacon so many times over the past six years. From Sheridan’s birth, to Tyson’s occupational therapy, to epilepsy and rheumatoid arthritis and so many other points in between – we’ve been eternally grateful for coverage for things that could have easily driven us into serious debt.
But this week, the adventure takes another twist and turn as we sort out an allergic reaction Sher’s been dealing with the past few weeks. What we thought was a complication resulting from a new med we’ve been working with may actually end up being a newly-developed food allergy. And for this little one who uses food for therapy, the thought of losing nuts, eggs or strawberries was a crushing blow to our keto kid.
Sheridan has always been involved with her medical journey and treatment, making decisions about her care and discussing how different choices she makes may impact other aspects of therapy. So with a change like this, our peanut butter-loving, scrambled egg-eating keto warrior was, understandably, a bit concerned as we remove some of these potential triggers while we wait on allergy testing.
A tearful little girl sat in my lap last night, upset that her favorite nighttime snack wasn’t an option, and she sobbed the following …
“Daddy, if they take my bacon, it’s going to be a disaster!”
We would love your prayers as we continue to seek guidance, start allergy testing, make changes and support Sheridan as she does all of the hard work. Her spirit, patience and flexibility are nothing short of admirable as we constantly modify her lifestyle to hit our goal of zero seizures. I stay confident we’ll get there!